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Monday, June 29, 2009
Friday, June 26, 2009
What a week!
I am so shocked and sad about Michael Jackson's (and Farrah Fawcetts) death! I was always a fan of Michael Jackson, even when he went through all the troubles. I hope he rests in peace.
It has been such a busy week! Along with the usual therapy on Tuesday and Thursday, Shane also met with his other ABA therapist (he has 2 that comes) on Wednesday. He seemed to get along with her great. ABA has been starting off a little slow but I guess thats a good thing. He will be having ABA therapy every Wednesday and every other Thursday. Sessions usually last an hour and a half to two hours.
Makenna had her pre op appointment for her Tonsillectomy on Wednesday as well. I am so nervous! I know that she will do ok though. Her Tonsillectomy is scheduled for next Thursday, so our 4th of July weekend will be mellow this year.
Here is a little video clip if Shane at SPEECH therapy this past Tuesday:
It has been such a busy week! Along with the usual therapy on Tuesday and Thursday, Shane also met with his other ABA therapist (he has 2 that comes) on Wednesday. He seemed to get along with her great. ABA has been starting off a little slow but I guess thats a good thing. He will be having ABA therapy every Wednesday and every other Thursday. Sessions usually last an hour and a half to two hours.
Makenna had her pre op appointment for her Tonsillectomy on Wednesday as well. I am so nervous! I know that she will do ok though. Her Tonsillectomy is scheduled for next Thursday, so our 4th of July weekend will be mellow this year.
Here is a little video clip if Shane at SPEECH therapy this past Tuesday:
Monday, June 22, 2009
Happy Father's Day!
Hope everyone had a nice Father's day Weekend!
We had a fun filled weekend ourselves. Mike and I took the kids to the Water park and then we all went out to dinner to celebrate! It was fun!
Here are some pics of our dinner last night:
Shane and Daddy
Daddy's Little girl
Goofballs
Da Mullins Clan
LOVE
We had a fun filled weekend ourselves. Mike and I took the kids to the Water park and then we all went out to dinner to celebrate! It was fun!
Here are some pics of our dinner last night:
Shane and Daddy
Daddy's Little girl
Goofballs
Da Mullins Clan
LOVE
Monday, June 15, 2009
week 1...
Well, we made it through the first week of Shane's diet, and boy was it SUPER DIFFICULT!
This first week we only removed dairy, and it sounds like it's pretty easy but its not!!! and they say thats the easiest part so I hope i can continue!!
I cleaned out the pantry and looked at every label. I swear almost 99% of what we had has gluten and/or casein in it. I have been giving Shane almond and rice milk and luckily he's been drinking it fine. Its the food that I am having problems with. For instance Shane LOVES mac and cheese and now i can't give it to him. The great thing about the mac and cheese too was that I was able to hide some veggies in there for him. I also was gonna make him some spaghetti but when I looked at the ragu label, it said there was milk in it! I ended up making sauce from scratch but he didn't like it as much! He can't have most of his favorite snacks either, because most of it is chocolate which can have milk in it.
On Saturday we went to a birthday party and I made Shane a special cake to eat while everybody else had birthday cake and ice cream. I felt so bad, but he ended up liking the cake!
Once we start removing gluten though that is going to be sooo hard. I won't be able to give him chicken nuggets (because of the breading) , sandwiches (unless I use special bread) , saimin or chicken noodle soup. All his favorite stuff...Poor guy!
This first week we only removed dairy, and it sounds like it's pretty easy but its not!!! and they say thats the easiest part so I hope i can continue!!
I cleaned out the pantry and looked at every label. I swear almost 99% of what we had has gluten and/or casein in it. I have been giving Shane almond and rice milk and luckily he's been drinking it fine. Its the food that I am having problems with. For instance Shane LOVES mac and cheese and now i can't give it to him. The great thing about the mac and cheese too was that I was able to hide some veggies in there for him. I also was gonna make him some spaghetti but when I looked at the ragu label, it said there was milk in it! I ended up making sauce from scratch but he didn't like it as much! He can't have most of his favorite snacks either, because most of it is chocolate which can have milk in it.
On Saturday we went to a birthday party and I made Shane a special cake to eat while everybody else had birthday cake and ice cream. I felt so bad, but he ended up liking the cake!
Once we start removing gluten though that is going to be sooo hard. I won't be able to give him chicken nuggets (because of the breading) , sandwiches (unless I use special bread) , saimin or chicken noodle soup. All his favorite stuff...Poor guy!
Thursday, June 11, 2009
inspirational...
Just found out that my cousin Kalani is gonna run a marathon in October in San Francisco for the Leukemia and Lymphoma society, and asked to run in Mike's cousin, Donna's honor!!! Donna was diagnosed with Lymphoma cancer last year. When I heard he was running for this important cause I told Kalani about her. I emailed Donna and she was happy to hear that Kalani wanted to run in her honor!
Here is what info he wrote about the race:
On 10/18/2009 I will be running in the Nike Women's Marathon in San Francisco, California. As part of The Leukemia & Lymphoma Society’s Team In Training, I am joining hundreds of people around the country to train and run in this event. I am excited to unite my passion for running with fundraising to support a great cause.
Through the Team In Training program, I will have a coach, a training regimen, nutrition advice, a great team of athletes with a common goal, and lots of support. Beside the challenge of training for and running 26.2 miles, I am committed to raising $3600 to support the Society in its battle against blood cancers. Leukemia is the number one disease killer of children, but it strikes ten times as many adults.
I am writing to ask you to support me in my project by contributing as generously as you can to The Leukemia & Lymphoma Society on my behalf. Your contribution will fund the research being done to find a cure for blood cancers. While significant progress has been made, there is more work to be done in the fight against these diseases. Increased funding is the key.
As I complete 26.2 miles, you will be with me in spirit, and your partnership will inspire me to run faster and stronger to the finish line! Please join me in this great challenge. You can contribute by mailing a check payable to The Leukemia & Lymphoma Society back to me or visit my webpage at http://pages.teamintraining.org/mi/nikesf09/kbennu
to donate easily on-line. Your contribution is 100% tax deductible and will promote continuous research, patient assistance, support systems, and ultimately help to fund a cure for these devastating diseases.
On behalf of The Leukemia & Lymphoma Society and the lives they touch, THANK YOU!
Sincerely,
Kalani M. Ben
His webpage to track his project is here: http://pages.teamintraining.org/mi/nikesf09/kbennu Please check it out!!! for a GREAT cause!
Here is what info he wrote about the race:
On 10/18/2009 I will be running in the Nike Women's Marathon in San Francisco, California. As part of The Leukemia & Lymphoma Society’s Team In Training, I am joining hundreds of people around the country to train and run in this event. I am excited to unite my passion for running with fundraising to support a great cause.
Through the Team In Training program, I will have a coach, a training regimen, nutrition advice, a great team of athletes with a common goal, and lots of support. Beside the challenge of training for and running 26.2 miles, I am committed to raising $3600 to support the Society in its battle against blood cancers. Leukemia is the number one disease killer of children, but it strikes ten times as many adults.
I am writing to ask you to support me in my project by contributing as generously as you can to The Leukemia & Lymphoma Society on my behalf. Your contribution will fund the research being done to find a cure for blood cancers. While significant progress has been made, there is more work to be done in the fight against these diseases. Increased funding is the key.
As I complete 26.2 miles, you will be with me in spirit, and your partnership will inspire me to run faster and stronger to the finish line! Please join me in this great challenge. You can contribute by mailing a check payable to The Leukemia & Lymphoma Society back to me or visit my webpage at http://pages.teamintrainin
to donate easily on-line. Your contribution is 100% tax deductible and will promote continuous research, patient assistance, support systems, and ultimately help to fund a cure for these devastating diseases.
On behalf of The Leukemia & Lymphoma Society and the lives they touch, THANK YOU!
Sincerely,
Kalani M. Ben
His webpage to track his project is here: http://pages.teamintrainin
Wednesday, June 10, 2009
a few pics
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On Monday I went to an Autism workshop for a couple hours. It was really great and informative. A lot of what they talked about I already knew about, doing research on the internet and reading books. But I am also now a little depressed and feel like a bad mother. I hate not knowing what is going on in Shane's mind. And I feel bad because he can't communicate with me. I hate getting frustrated at him because I don't understand what he does. I hate feeling like I don't spend enough time with him teaching him enough. I hate not knowing if he's happy or hurting. When the speakers (special ed teachers and some parents of Autistic children) talked about their experiences with it, I could totally relate to everything they said, and it was a relief knowing that I'm not alone but it was also a wake up call...like wow, I am really going through this too. This is really happening to me... I never thought I'd be a mother of a special needs child. and its hard to take. i just want to cry and scream sometimes.
We are attempting a diet change with Shane again, and hopefully we can be more consistent this time. It is so difficult and frustrating. We are trying to do it slowly this time and starting by removing all his dairy products. Luckily he's been liking the almond milk we have been giving him. Once we get him used to it we are going to remove all the gluten from his diet- and believe me that is so extremely hard. Gluten is in Everything! In every single food he loves, chicken nuggets, saimin, mac and cheese, bread. I don't know how I'm gonna do it. It is also so expensive finding specific foods for him. Valdosta doesn't have much of a selection too unfortunately.
He is also finally starting his ABA therapy on Thursday. I can't wait, because I have heard so much good things about it. So he will be doing this type of therapy along with his speech and occupational therapy.
We also contacted a DAN (defeat autism now) doctor in Macon Georgia for biomedical treatment on Shane. Right now the wait list is 2 months but hopefully they can help out. I met another mom who went to the doc and she saw amazing results. This is the same type of treatment Jenny Mc carthy did for her son.
So that is what is going on with Shane so far. We go back to Marcus Autism Center in August for a follow up.
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On Monday I went to an Autism workshop for a couple hours. It was really great and informative. A lot of what they talked about I already knew about, doing research on the internet and reading books. But I am also now a little depressed and feel like a bad mother. I hate not knowing what is going on in Shane's mind. And I feel bad because he can't communicate with me. I hate getting frustrated at him because I don't understand what he does. I hate feeling like I don't spend enough time with him teaching him enough. I hate not knowing if he's happy or hurting. When the speakers (special ed teachers and some parents of Autistic children) talked about their experiences with it, I could totally relate to everything they said, and it was a relief knowing that I'm not alone but it was also a wake up call...like wow, I am really going through this too. This is really happening to me... I never thought I'd be a mother of a special needs child. and its hard to take. i just want to cry and scream sometimes.
We are attempting a diet change with Shane again, and hopefully we can be more consistent this time. It is so difficult and frustrating. We are trying to do it slowly this time and starting by removing all his dairy products. Luckily he's been liking the almond milk we have been giving him. Once we get him used to it we are going to remove all the gluten from his diet- and believe me that is so extremely hard. Gluten is in Everything! In every single food he loves, chicken nuggets, saimin, mac and cheese, bread. I don't know how I'm gonna do it. It is also so expensive finding specific foods for him. Valdosta doesn't have much of a selection too unfortunately.
He is also finally starting his ABA therapy on Thursday. I can't wait, because I have heard so much good things about it. So he will be doing this type of therapy along with his speech and occupational therapy.
We also contacted a DAN (defeat autism now) doctor in Macon Georgia for biomedical treatment on Shane. Right now the wait list is 2 months but hopefully they can help out. I met another mom who went to the doc and she saw amazing results. This is the same type of treatment Jenny Mc carthy did for her son.
So that is what is going on with Shane so far. We go back to Marcus Autism Center in August for a follow up.
Thursday, June 4, 2009
a few pics
Mike's parents left and we had such a great time with them! Can't wait to see them again in November! Here are a few pics from their last day:
Mike's birthday is coming up and we are going to Tallahassee for the weekend. Can't wait! Will post more pics soon!
Mike's birthday is coming up and we are going to Tallahassee for the weekend. Can't wait! Will post more pics soon!
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